Tuesday we took Mia in for an MRI focused on her brain and a visit with her Neurosurgeon.
We were looking for three things. One, have the plates in her head fussed prematurely. Two, is the shunt placed and working properly. Three, how is her brain developing.
The results were bittersweet.
On the positive side the shunt is working well and the Dr. isn't too concerned right now about the plates in her head overlapping and prematurely fusing together, which means no surgery at this point. On the flip side it was a reminder to us that even though she is doing so well, there are a couple specific internal parts of her brain that simply don't exist and that the back half is still connected when it shouldn't be. The findings are still consistent with Semi-Lobar Holoprosencephaly.
Scan or no scan the doctors have consistently told us that the best way to tell how she’ll do when she’s older is whether or not she hits her developmental milestones. And so far so good! She is now 8 months old. She is very attentive, sleeps well, eats well (baby cereals and food), rolls over, sits up on her own, picks up toys and moves them from hand to hand and is just as good and happy as they come.
Thursday, December 31, 2009
Tuesday's MRI
Posted by
Greg
1:26 PM
Monday, December 28, 2009
Wana Waves for Christmas
Posted by
Greg
12:06 PM
We had a great time at Wana Waves last week. We spent two days in Shipshewana Indiana at the water park hotel. As snow fell outside we enjoyed the 84 degree warmth inside. There were lots of slides for all the kids to have a great time. We got there on Monday afternoon and left late Tuesday. The rooms were amazing. They had a queen size bed in one part of the room. Divided by a partial wall was another area with two sets of bunk beds for the kids. Then the bathroom area in the front. Very ideal for a family.
Wednesday, October 22, 2008
Tuesday, August 26, 2008
St Louis Vacation
Posted by
Greg
8:19 PM
Rather than write about our vacation I just posted a bunch of pictures to our Flickr account all tagged with 'stlouis'... enjoy!
Monday, December 24, 2007
Tuesday, December 11, 2007
First Year With The Christmas Train
Posted by
Greg
8:33 PM
This year we opened the first Christmas gift the day after Thanksgiving... yep, that's right, the day after Thanksgiving. The girls had waited a couple weeks now and were more than ready to open the huge box from grandpa. To their delight, inside was a Christmas train fully loaded with lights, sounds, moving elves and Santa!
So, we had to set it up. They helped put the tracks together...
As Carter eagerly awaited...
Once the tracks were put together we got the engine and cars out and got it running. Carter couldn't resist going after it...Carter also got a chance to run the train... sorry dad, he's not going to have his first train conducting experience with ya.
And after a job well done all the kids sat and watched the train go round and round and round and round and...








